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Your email address will not be published. My RA started when I was 23 years old.. Its nice to finally be listened to! OMG, thankyou for describing exactly how I feel.
This upset me because this all happens. Like you said keep positive and there is light at the end of the tunnel, even though it is a long one.
I have only had it for about 8 months so I am a Newbee, still struggling to find other Newbees, so if there is anyone out there?
Dx 16 years ago as a young mother. With the help of meds hit or miss and kind, compassionate coworkers, I am still able to work and be productive.
Thanks for the light-hearted attitude. Makes all the difference! I have printed off a copy for all of my family in hopes to better help them understand.
I am one of those who does not looks sick….. People always look at me funny…. I cry alot…it has been 4 years and tons of medicine…. The oil can was the perfect way to put it!
Thank you RA guy! You can take an advil and be fine. Thanks for the website. This is a great breakdown, thanks. I have a few friends that would really appreciate this, will be sending it on.
Yes, you nailed it perfectly! Well said, RA Guy. Now to get my family to read this. But we deal as best we can, do all we can to fight it with our team of specialists, and try to live each day as pain free as possible.
I ended up on the ground knees first. It is very painful at first, but that subsides in no time at all. Taking the mtx as prescribed, and a little prednisone now and then when it flares up keeps the RA pretty well in check.
I knew someone when I was a teenager who had RA with no treatment available to keep her from being crippled.
She was terribly crippled, in pain most of the time, and not able to enjoy her life as we now can while living with RA. The treatments now available have allowed all of us to live much better lives than we could if we had had this disease many years ago.
We all need to be thankful for all the treatments and help that is now available to us. I know I am. And thankful for your website and all the great information available here.
Great job, RA Guy! You have made this so simple that I used it to explain to my elementary school aged kids what is wrong with their mother!
I love that you explained it with pictures and the superheros and everything, now all my family really understands the situation.
This is so awesome! Just stumbled across your site. I finally got my insurance to cover Enbrel and am having high hopes for that. Otherwise, my dr just encourages me to take high doses of ibuprofin and vicodin which seems sort of like having a limb torn off and placing a bandaid over it.
Thanks for this online community. Thank you RA Guy and thank you Elizabeth for pointing out the unpredictable nature of rheumatoid disease.
I am really trying not to call it arthritis any more to stop the confusion I find that the way a flare can present at any time, then subside, only to appear in another joint entirely.
This leads to others doubting the sufferer because of this scenario: On Monday a flare presented in the ligaments and tendons on my right wrist and hand.
Coworker expressed concern when she saw the swelling, deformity and obvious pain. I want to disappear, wish I was invisible.
Easier than explaining again and again, but furthers the problem of ignorance of the general public and even some of the medical community.
Thanks for your blog. You are my heros! You have broken the shell that cocooned me when I fell upon your site. The only reason im standing upright is the various meds that my Rheumatologist perscribed me.
I felt so isolated for sometime thinkng I was alone on this path. Opportunity to have your words published in a zine.
All the best and keep on fighting with your superpowers! I was diagnosed with RA a couple of months ago. Thanks mate, I really loved reading your log.
Thanks for this simple, explanatory guide. I put it on my blog, giving you credit. You make it sound kinda cute, haha — whereas the reality is… well, we all know what that is like.
Very clear, concise descriptive view! People of all ages can relate to the terms you used to describe RA.
Ive had RA for 7 years now and it is definitely something that will always be a work in progress to cope with.
I recently had my pharmacist tell me about a lady she met and her daughter recently was diagnosed. Both her and her mom are having a really hard time dealing with this and I was able to reach out and kind of walk them through my experiences and help them with coping with theirs.
Glad you created this site for people to connect about this P. If I could jump around, I would do that now with enthusiasm for this great presentation.
This is such a great description of RA! I was diagnosed this year, after having my first child. I am only 30 and am now pregnant with my second child and therefore my RA is active and untreated right now.
I am searching for encouragement, and am so glad I found your blog. I will be checking it often! I always smirked at life thinking I had the upper hand and was well on my way to early retirement and my life long dream of traveling.
Sometimes I believe I did myself a disservice as no one seems to understand how I went from an overachiever to underachiever in a short span of a few years.
But I forgive them as I am sure I would not have understood that the pain in your wrist could be much worse than cutting it off with a dull butter knife.
I just wish I could feel comfort again someday- you know, the kind most people take for granted. I am glad however, that my mind is still intact minus the depression, loss of energy, and medicine side effects like from prednisone.
I recently watched an interview of Micheal J foxx, and realized that he has to be even stronger than me to deal with his issues every day, and there are others even worse off.
So sometimes putting things in perspective helps me to cope. This is absolutely wonderful. A quick yet informative little piece of reading that can be helpful to those who have RA or may know someone who does, or might not have any clue what the disease is.
I used to discuss it for show-and-tell, or volunteer to give speeches on it in classes like Health after never seeing it in a health book, ever.
Really wish this had been around then. I wish I could forward this to every single person I know. It was fun while you told it how it is.
So that is all us RA have to keep in mind. You put it all so clearly. Thank you very much on this. I am from Belgrade, Serbia.
My mother developed RA more than 20 years ago and we both have been living with it since, each one in their own way. It is really as you described it.
But, everything else is there. Great point is Team RA. So, I use this opportunity to pay tribute to all wonderful doctors that are helping us: I send love to all who live with this disease and respect for your patience and courage.
I am going to share this with friends and family. You put into words — what I could not — and exactly how I feel. I think you should go into overtime and add the neurological symptoms: I beg to differ on this one.
I am grateful for your website. So much great information here for all of us who suffer these diseases!
This explanation is very good, but I would just like to add that it is not just joints and occasionally organs that become inflamed.
This disease attacks our whole body. I have have never had any major hand issues, but I have had muscles and cartilige in my rib cage and my throat inflame as well as tendons a tendon in my ankle actually tore from inflammation and my eyes I lost partial vision once during a flare — thankfully, it came back , and I have scarring in my lungs.
People need to know ALL of the serious effects of this disease and how we with RA statistically have our lives shortened by it. This is absolutely incredible RA Guy!
You inspire me everyday as I Thrive Autoimmune. If I am able to help just one person, they way you have helped me through my journey, then it will have all been worth it.
I put together my own little infographic AI. Your 60 second guide to RA was the first thing I was able to show my boyfriend that gave him an idea of what my journey has been like, allowing me to be open and honest about my illness for the first time.
I want to be able to do for Gorgeous AI. Girls what you have done for RA Superheroes! Your article is absolutely brilliant!!
I have a 3 year old little boy who was diagnosed with juvenile RA at 20 months…. I can help him manage his flairs…. I think there should be a pamphlet to give to people who ask questions and say why dont you work, and You dont look sick, and you were not this tired a few months ago, I appreciate this article and have forwarded this to my friends, I only wish Most people who Generally knew me would have a clue, I hate the Looks.
Thank you so much for simply validating my feeling of craziness! I do believe I have serious joint damage. I was diagnosed almost 3 yrs.
Very good super hero! I was diagnosed with Rheumatoid Arthritis back in when i was I feel like death in the morning! The pain does seem to get better throughout the day unless I lay in bed.
Do not let anyone put you down keep fighting!! Thank you for your 60 sec guide. My college age daughter recently found out she has RA.
She is learning to live without soccer and running. She is having to learn to live with the fatigue. It is so hard for her to ask for help. And, some of the other RA blogs do not offer support only horror stories.
I know I can never understand how she hurts, but your short guide at least attempts to put the meanness of RA in a simple language that the the people who love and support her can understand.
Does your RA pain radiate to adjacent bones? My mother is refusing to understand what RA really means.
I have not even received a confirmed diagnosis, however I have polyarthritis and positive anti-CCP test.
Even typing right now hurts — people always compare you to someone else, someone who has cancer or something else.
Like someone I think here has said, those who have cancer at least get a strong support network because everyone knows the disease and everyone is compassionate.
Rheumatoid Arthritis sounds alright because it has arthritis in it. I was just diagnosed with none reactive RA no ra factor in blood.
I just asked last visit with Rom. All she said was oh maybe its the tendons. As a newbee I have so many questions.
I have no idea what to expect next. I had a flair up this past week. I always get OH everyone ends up with arthritis.
No not this one. I have a question for all has any one done any dietary changes that may help with the inflammation. Ive gotten so many different answers.
Well if your the one with it. I was swimming a very very short swim everything hurt when I was done I just cried.
I have had severe RA since I was about 17 years old! I am 39 now and boy has RA changed my life and been one hell of a Roller coaster ride!
I had my left hip replaced when I was 23 due to RA and I just had an Ankle Fusion in November of and then I just had my right knee replaced 4 weeks ago today June 18 !
I had to go on total disability in Dec of 09 due to my arthritis getting totally out of hand and flairing up to the point that I was missing way more work than I should!
I deal with bouts of depression and feeling hopeless at times! Living in chronic pain day in and day out can sure wear a person down no matter how positive you try and stay!
It does me good to talk with others that live with this disease and to vent to them because unless you have lived with this wicked pain people have a hard time understanding!
My family bless their hearts try to understand and they give me awesome love and support! My RA has Never gone into remission, although I pray that someday it might!
Every single joint in my body has been affected! As my sister says there is a special place in Heaven for people that live with this wicked disease!
Many acts of worship included hymns , prayers, and spells to help Ra and the sun boat overcome Apep. The rise of Christianity in the Roman Empire put an end to the worship of Ra by the citizens of Egypt ,  and as Ra's popularity suddenly died out, the study of Ra became of purely academic interest even among the Egyptian priests.
As with most widely worshiped Egyptian deities, Ra's identity was often combined with other gods, forming an interconnection between deities.
From Wikipedia, the free encyclopedia. This article is about the Egyptian deity. For other uses, see Ra disambiguation.
In one of his many forms, Ra, god of the sun, has the head of a falcon and the sun-disk inside a cobra resting on his head. Funerals Offering formula Temples Pyramids.
Dedi Djadjaemankh Rededjet Ubaoner. For the Egyptian month named in his honor, see Mesori. Archived from the original on A Dictionary of Egyptian Gods and Goddesses.
The Question of Evil in Ancient Egypt. The cult of Ra: Sun-worship in ancient Egypt. Thames and Hudson, p. A guide to Egyptian religion.
Oxford University Press, p. Women in Ancient Egypt. Book Ancient Egypt portal. Retrieved from " https: Egyptian gods Solar gods Underworld gods.
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